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Anyone out there with Autoimmune inner ear disease (AIED)?

Autoimmune Diseases | Last Active: Jun 25 3:06pm | Replies (217)
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@tinae

Also, do you have Tinnitus at all? Did you do you still did it get better? That’s one thing that I have that’s pretty and tolerable and I left here right now. Just curious about that.

And Humira has been around for 20 years maybe it’s considered a biologic it doesn’t really do as much damage as like methotrexate doesn’t affect your kidneys or liver but obviously it’s not working so nothing is really working.

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Replies to "Also, do you have Tinnitus at all? Did you do you still did it get better?..."
beckyseattle | @beckyseattle | Jul 3, 2023

I used to have some tinnitus, altho it was never terrible. I know it can be for some people. I found that my tinnitus just disappeared while I was wearing my CIs. At the beginning, it only disappeared while the CIs were on, but it's been completely gone for years now. Who knows? Maybe it's because the implants connect directly to my auditory nerve and use up all the bandwidth. (that comment was just me spouting home-grown theory, not anything I know to be a fact).
I think Humira has made life much better for many people with terrible autoimmune diseases like arthritis. No criticism from me for drugs that help so much, just drugs like high-dose prednisone that made me feel crummy. Pure selfishness.

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