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Autoimmune Diseases | Last Active: Oct 30 1:08pm | Replies (32)
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@goldacharna

I was just diagnosed with CIDP. My symptoms started in April and I’m starting IGIV GAMMAGARD next week. Not all my test are supporting this diagnosis but my neurologist is basing it on main 2 - EMG/ nerve test and a little elevated protein.

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Replies to "I was just diagnosed with CIDP. My symptoms started in April and I’m starting IGIV GAMMAGARD..."
dwyermw | @dwyermw | Jul 3, 2023

there are many variance of CIDP

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John, Volunteer Mentor | @johnbishop | Jul 3, 2023

Hello @goldacharna, I would like to add my welcome to Connect along with @dwyermw and others. Hoping your upcoming treatments will provide some relief for your CIDP symptoms.

You might find the following related discussions helpful.
— Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions:
https://connect.mayoclinic.org/discussion/cidp-having-ivig-reactions/
— CIDP and concerns about treatment risk factors:
https://connect.mayoclinic.org/discussion/cidp/.
Can you let us know how your treatment goes next week?

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lynn66618 | @lynn66618 | Nov 21, 2023

Hi, I was diagnosed the same way EMG/nerve study and the top end of normal proteins in spinal fluid. Currently waiting for IVIG insurance approval. Hope all goes well next week!

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