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@mrgvw

I am brand new to this site... still have no clue how to even navigate this thing. Not sure how to private message yet either. ... but I'm just here to help and advise should you need it. I'm still on my own EC journey, now 3 years post-op. I always provide others my cell phone... but not yet sure if this is in private... and most EC sites consider private info out in the open a faux pas. Should you need any help or have questions... about surgery, post-op journey, immunotherapy... maybe then I'll be able to figure things out.

Gary

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Replies to "I am brand new to this site... still have no clue how to even navigate this..."

Thank you Gary! We are just in the beginning of the journey. I’m not quite sure from the endoscopy on April 14 until now it’s definitely been a fast ride. I got him into appointments quickly by the grace of God making sure I called for every cancellation of appointment so that I could get in quicker. Six weeks of radiation and chemo are done, but it wasn’t until the last couple weeks that I see my husband deteriorate. Now we are in that six weeks of recovery, but it sure is difficult. The nausea and vomiting are real. He does not do well with that. Surgery will be in six weeks. Did you ever regain your immune system and your strength for such an extensive surgery? I’ve been a postsurgical nurse for majority of my career, and it’s very difficult to recover from such an extensive surgery if you’re going in very weak and somewhat immunocompromised.
I want to take the entire month off after his surgery to assist him. But he thinks the whole we need a week off and then back to work. How long did it take before you became more independent after your surgery? To drive to doctor appointments, to be able to manage your activities of daily living, including tube, feedings by yourself etc .
Just some questions I have. Thank you.