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Anyone else have CHEK2 gene mutation? And have had multiple cancers?
Cancer | Last Active: Mar 11 10:27am | Replies (51)Comment receiving replies
Hi @journey99
You are the second person to say they only take Synthroid brand, not the generic because Synthroid worked better for them. Both of you had your thyroid removed so I'm guessing on a much higher dose than me with hypothyroidism for 35 years. I took Synthroid in the beginning, but I've been taking the generic for 30 years since that is what insurance covers. I was just told to stick with the same manufacturer when using generic as they may all dose slightly differently. I'm wondering if you could tell me exactly what difference you noticed between the name brand and generic. Thanks.
Replies to "Hi @journey99 You are the second person to say they only take Synthroid brand, not the..."
My Dr would have to change my dosage every 3 months on the generic. I use the VA and they will not let us use synthroid. My Dr did some math and figured out how to make the 137mg dosage work for me because that dosage was only made by synthroid. I take 2 pills mostly, 1 day a week I take 1 pill or no pill. I have been on that dosage for 3 years now (12 years on generic). It saves money cause I'm not throwing away pills every 3 months. Since I have been stable I have found myself to be less tired and I realized my hair loss seems to cycle instead of just happening randomly. My body temp control still is wonky.
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The difference we found was we couldn't get my levels to stabilize with the generic brands. My levels aren't the same each time I do bloodwork, but they are pretty consistent within a range. Insurance only covers a small portion of the Synthroid brand, and it is costly. I have thought about trying generic again for insurance purposes but not sure I want to take the risk at this time.