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Paroxysmal Tonic Upgaze Diagnosis. Could our baby be underdiagnosed?

Brain & Nervous System | Last Active: Jun 12, 2025 | Replies (9)
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Profile picture for grandma1 @grandma1

Our grandson recently received a similar diagnosis. Open for discussion.

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Replies to "Our grandson recently received a similar diagnosis. Open for discussion."
John, Volunteer Mentor | @johnbishop | Jul 2, 2023

Hi @grandma1, It must be difficult in not knowing a lot about the diagnosis and probably having a lot of questions. How old is your grandson?

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kayleah | @kayleah | Feb 19, 2024

Hi grandma1, how is your grandson doing?

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