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DiscussionWhat steroid dosage did you start on? Did you find the right dosage?
Polymyalgia Rheumatica (PMR) | Last Active: Apr 5 5:38pm | Replies (154)Comment receiving replies
Replies to "Is steroid-related bone loss reversible? I haven't run into this, other than a small study involving..."
This article suggests that only one in four with diagnosed PMR are taking supplements od vitamin D and calcium to protect their bones.
https://evidence.nihr.ac.uk/alert/polymyalgia-rheumatica-treatment-reviews-and-falls-assessment/
I need to be careful about a fall, I get dizzy quite often, especially after leaning over or bending down. Further, I am also still losing weight. It's something I do when stressed. I see my doctor again on July 11.
This article/post mentions it, and has sources at the end of the article. It’s also medically reviewed: https://www.healthcentral.com/condition/osteoporosis/steroid-induced-osteoporosis
And at the end: “ Other alternatives to oral corticosteroids for autoimmune conditions include methotrexate (Otrexup) and azathioprine (Imuran). However, people with certain autoimmune conditions may need steroids to help manage their symptoms. If that’s the case for you, there are steps you can take to protect your bone health.”
There are alternatives, but methotrexate, NSAIDs and biologics, or undertreating with prednisone also have their own risks =\
Prednisone and osteoporosis are concerning, but depending on the situation the risk of not addressing the inflammation from PMR can be greater, like most things? PMR is one of the few autoimmune conditions with a fairly straightforward treatment regimen, though it’s a challenge to implement and not everyone is a responder.
Most rheumatologists are accustomed to managing the risks of medications; I would hope that would be the case that you’ll be able to talk to your doctor, fingers x’d. My dad’s rheumatologist specifically brought up the concern to us, and suggested options.