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Anger. Guilt. Anger….cycle

Caregivers: Dementia | Last Active: Oct 31, 2023 | Replies (43)

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@doubleprogressive

Never ever did I ever think I would have turned into the person I have become.

I have journaled that the disease has had an affair with my husband. The only way I can describe it. I don’t know him, he’s changed, he disregards me….

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Replies to "Never ever did I ever think I would have turned into the person I have become...."

I share your pain. And I mourn the loss of the relationship we had until Lewy came to visit. Will celebrated 50yrs last November. He doesn't remember it & at the time, he did not recognize our older son (thought he was Sanat Claus, but he hardly resembles Santa), our brother-in-law or our oldest grandson! The only thing he remembers is seeing our daughter in the dress his mom wore as mother-of-the-groom at our wedding & the ride to the restaurant where we celebrated. I don't know my husband anymore either & with the Capgras syndrome, he doesn't always recognize me, other family members or our house, in which we have lived for 42 years this Saturday. Occasionally though, there is some joy, when some of his old characteristics appear. More often now that he has been on Nuplazid (34mg) for 3 1/2 weeks.

Hang in there, as we all do.

Pauline (Lena)