My daughter found out 4 yrs ago that she has EDS because of a sweet knowledgeable pediatrician she established her young son with. He sent my grandson (at 7) to a Geneticist and he was diagnosed with EDS along with his Mom (I never knew, nor did her Pediatricians or Family Physicians, growing up😥) Her younger daughter also has been diagnosed with EDS. Mom and children also have a few other not so nice syndromes that can sometimes also be present with EDS,(MCAS and dysautonomia). I feel so bad for them all, especially the children to have to start this journey at such a young age. 😥🙏❤️