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Natural remedies for MAC

MAC & Bronchiectasis | Last Active: Jun 20 9:12pm | Replies (45)

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@rchildress

I agree that it sounds like the side effects are worse than the disease therefore I am one that believes that I would rather live a good quality of life than a horrible quantity of life. I am working on my immune system to fight this. I am taking B Complex shots and several other immune building things on top of the one antibiotic that everyone says I shouldn’t take by itself I have spoken to 5 doctors and have also been referred to an Infectious Diseases doctor that I am currently waiting to hear from for an appointment. One doctor said to do nothing and recheck in 6 months. The 4 other doctors say that the 3 med cocktail is the chosen choice to kill this bug but understand that the side effects are sometimes very unpleasant and also can cause permanent damage to other organs. Therefore, at this stage I am reading all I can to figure this out and this group is absolutely wonderful. I am feeling great and have lots of energy. I am a widow and I live on an acreage that I mow and keep looking nice by myself without any problem. I would like to know any remedies that people have tried to avoid taking horrible drugs with horrible side effects.
I did get a nebulizer and am using 7% saline but still not coughing up anything. I would like to know any other suggestions of what to do to help except take more drugs. Maybe a trip to Hawaii. Lol
Thanks everyone

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Replies to "I agree that it sounds like the side effects are worse than the disease therefore I..."

Not Hawaii . I was told that the soil in Hawaii is full of MAC and that is where numerous people have MAC. Doctor said that’s one place not to vacation with this disease.

@rchildress
Have you tried attaching your nebulizer to Aerobika while nebulizing? That worked for me! Also, I began doing postural drainage, that brings up more, and finishing with Autogenic Drainage app, for last little bit in my lungs! Hope this helps!

I do an at home ivig infusion prescribed by my Doc. Keeps antibodies up that I lack naturally which I believe got me into this mess in the first place. Diagnosed with SAD...
Specific Antibodies Deficiency. Blood test for titers will tell you this info. I am super low ,even after immunizations for pneumonias/staphylococcus & streptococcus.
This protocol alone keeps those bugs away. For the MAC, since I just starting chemo for BC, doc started me on Azithromycin 3 x week and antifungal every day to be sure aspergillous or MAC does not flare up during the next 5 months since that could become a VERY SERIOUS situation for me. Before thus I was just doing IVIG / vest and nebb... but honestly now I'm really bad with actually doing both. SOOO much going on tn.
Best of luck to to! Holla back of you need any more info.