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DiscussionCan PMR come on more gradually?
Polymyalgia Rheumatica (PMR) | Last Active: Jul 4, 2023 | Replies (22)Comment receiving replies
Replies to "I would like to weigh in about PMR coming on gradually. My symptoms began in Jan...."
Me too, one shoulder started feeling inflammatory months before, then I tore a hamstring which took a month to get better, then suddenly the inner hips had me crouching to even walk. I was playing an excessive amount of pickleball and blamed it on that, I truly thought I needed an orthopedist and was thinking I suddenly had severe osteoarthritis and needed a double hip replacement. Never a twinge from either hip in my life, age 71.
It dawned on me that this was PMR when BOTH shoulders and hips suddenly hurt equally. I couldn't get out of bed. I started 20mg myself, no doctor, tho my husband is an internist and we always have lots of steroids on hand at home.
Meanwhile no rheum in our area will take PMR patients, they expect primary care docs to deal with it. Medicare pays nothing and there are a lot of us with PMR. Patients end up managing their own tapers anyway and it can go on for years.