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Can PMR come on more gradually?

Polymyalgia Rheumatica (PMR) | Last Active: Jul 4, 2023 | Replies (22)

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@lizward46

I would like to weigh in about PMR coming on gradually. My symptoms began in Jan. 2023 with sore hip flexors. I thought it was too much exercising and figured it would go away. It didn’t, but stayed the same for another couple of months. I was able to pretty much do my normal activities. We took a long trip out of the country in April and then I noticed great difficulty getting on and off the tour bus. By the time we returned home my hip pain had increased. I went to two orthopedic dr. who said it was osteoarthritis and they sent me to PT. Pain was getting worse, PT didn’t help and then my PT referred me to a rheumatologist. At that point I couldn’t get out of bed by myself, walking was a shuffle and getting up from a sitting position was very painful. Pain was bilateral in hips, lower back, across shoulder blades and in my neck. PMR was diagnosed and I am now on prednisone and tapering. So yes, PMR can be a gradual decline. The prednisone seemed like a miracle drug even though I know that it is not always a long term solution because of side effects. How to mitigate side effects: diet(anti inflammatory), exercise (not too strenuous), supplements (calcium, vit D, vit K, Pepcid). I have blood work every month and see my rheumatologist once a month. I too had trouble getting that first appointment. I asked to be put on a cancellation list and miraculously was able to see the dr. very quickly. I wish you well on this journey. PMR has takes up way too much space in my brain but if I can be of help to anyone who is suffering with this condition I feel better. Carpe Diem

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Replies to "I would like to weigh in about PMR coming on gradually. My symptoms began in Jan...."

Me too, one shoulder started feeling inflammatory months before, then I tore a hamstring which took a month to get better, then suddenly the inner hips had me crouching to even walk. I was playing an excessive amount of pickleball and blamed it on that, I truly thought I needed an orthopedist and was thinking I suddenly had severe osteoarthritis and needed a double hip replacement. Never a twinge from either hip in my life, age 71.
It dawned on me that this was PMR when BOTH shoulders and hips suddenly hurt equally. I couldn't get out of bed. I started 20mg myself, no doctor, tho my husband is an internist and we always have lots of steroids on hand at home.
Meanwhile no rheum in our area will take PMR patients, they expect primary care docs to deal with it. Medicare pays nothing and there are a lot of us with PMR. Patients end up managing their own tapers anyway and it can go on for years.