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Post-COVID Recovery is a Paradox

Post-COVID Recovery & COVID-19 | Last Active: Jul 22, 2023 | Replies (38)

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@mitchmysterysymptoms

YEP! Jesus, Prayer, Supplements, Exercise, YadaYadaYada... 'JESUS!' EVERYBODY GOT THEIR CURE and family just tells me, "Well, you LOOK marvelous, Mitch!" I've got a counter full of supplements, have people who pray for me (and yeah, even I have prayed for myself), I only get exercise if I take a load of AMPHETAMINES (Adderall Rx for my ADD/ADHD-so legit), have a truckload of FISH OIL due Monday morning (because ER doc actually mentioned it for inflammation so... using up the last of my supply now but 'no change yet), and B-Complex, D3, ZINK, Magnesium, Potassium, Melatonin... 'LOL' They want too cut into me and take a BIOPSY of my lymph nodes. Sounds very, very dumb, to me. WON'T / CAN'T order 'IL-6 (Interleukin 6) Test because 'not in their swimlane' - but it seems that's one of those tests that's going to give me the 'out-of-range' results I know I'm looking for - and for which 'IMMUNOLOGISTS and RHEUMATOLOGISTS' use for 'Followup ACTION' - and I know (because investigation/research) there are actually DRUGS PRESCRIBED for these things, by THEM. That's all I want - test me - try some drugs - see what happens - without some idiot cutting into me because, 'WE DON'T HAVE IMMUNOLOGISTS TO DO THE LOGICAL STUFF'. GAHHHHHHHHHHHH. They don't HEAR me - because NOT A DOCTOR and they seem determined to ensure I KNOW THEY ARE THE GATEKEEPERS. So. Scenarios to get to immunology department, somewhere, somehow... I'm at the 'LOL' point because all I get is 'BLOOD PRESSURE and COLONOSCOPY or COLOGUARD at every. Damned. Appointment. I haven't fired him yet because he's my own entry to the local system beside ER and I might need him for strep throat or a broken bone, sometime. 😉 Cheers.

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Replies to "YEP! Jesus, Prayer, Supplements, Exercise, YadaYadaYada... 'JESUS!' EVERYBODY GOT THEIR CURE and family just tells me,..."

I sense you frustration and empathize with your health problems. My post acute Covid 19 issues problems were cognitive memory issues, joint pain swelling/ extreme fatigue and insomnia (which exacerbates the fatugue). I showed my primary doctor research from Mayo and Stanford and he agreed to call in a prescription to the Mayo Clinic pharmacy for low dose naltrexone ((LDN) 4.5 mg) with NAC (supplements). It has helped enormously with energy levels, sleep and cognitive issues within 2 weeks. Find a PC who will be responsive, hear you and be amenable to accepting new research from reputable hospitals. Most professionals feel medicine is collaborative effort between patient and doctor, so being overly insisting about which tests you want performed may not be the optimal approach. You mention Cytokines which are mediators of inflammation. That and microclots appear to be the underlying mechanism of complex pathology of long Covid. Low dose naltrexone . LDN has an anti inflammatory effect. Measuring cytokines is not useful in my view because it’s too nonspecific and even if they are elevated, LDN is the only medication that works. Anti-inflammatory don’t . For microclots baby aspirin may help.

Im sorry you are going through similar issues I’m going through. They will not refer me to an immunologist or rheumatologist either… just keep going back to the same Dr who says they don’t know what else to do.