← Return to At NJH and need to vent
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Replies to "I just re read your response and thank you so much. It really helps to communicate..."
I agree, 93 is great! One of the docs at NJH told me that what his is! I was greatly comforted by that. So many of us understand that the fear that comes with the not knowing about this disease. I've read/researched everything I could get my hands on for the past 13 years...some too technical to make sense of, and some very informative and helpful. But I stand by my "One size does not fit all" with this disease. IF there was a treatment that offered all of us a positive outcome at the end of it, we'd be much less afraid. And I honestly believe NJH is doing research that will be beneficial, if not to us, to future generations of NTM sufferers. In the meantime, we look to one another for comfort and acceptance. I've never been judged on this forum for what I do or don't do...the beauty of sharing from the heart with folks that truly get it. Hoping for a peaceful day for you. Busy
You said, "My oxygen was 87 the first day I got here, today it’s 93……." That's great news! That means your body is acclimating to the altitude. Travel at altitude is scary for me because I can never get my O2 above the mid-80's.
Today we had an air quality alert, and I was outdoors tending to guests - I bet my oxygen was below 93 all day - at 900 feet of altitude.
So I have read more about your tests, and don't see anything alarming.
Also, when you feel anxious or in pain, can you try 4-4-4 breathing to calm yourself? Sit or lie quietly, put your hand on your belly and breathe in through your nose for a count of 4, hold for a count of 4 (if you can) then breathe out through pursed lips for a count of 4. You should feel your belly expand and contract as you do this. As you do this visualize your worry, fear or pain blowing away on your outgoing breath. Repeat at least 5 times, or as long as you need to until you feel calm.
This is a technique I use to calm pain spasms, shortness of breath, angry thoughts... Can you try it tonight to fall asleep without worrying?
Sue