I feel you about no prednisone because of existing eye conditions. I haven’t been officially diagnosed with PMR because like you my rheumatologist isnt playing along. And going to another is not an Option because he is the only one in my area. So, what I’ve done successfully to help my symptoms, is eat a AIP diet. Very restrictive but really simple to follow. Meat, vegetables (except nightshade) and fruit. I also take supplements for osteoporosis that maybe helping PMR…good luck to you on your journey.

We’re all rooting for you. I know what you mean about turning to the forums… It’s funny because some doctor folks get annoyed with internet research >_< I’d disagree, as long as we research and share information wisely.

My father’s PCP’s team also didn’t believe us when we brought our concerns to them—it took multiple phone calls, and their MD on call in immediate care refused to see us even after we had lab results strongly suspicious of PMR.

I have a theory that PMR gets missed because it often affects older people with other pre-existing conditions and either we can try to explain it away, or the healthcare providers can. It’s frustrating to me.

We’ll never know if not treating the PMR quickly enough was the reason, but within 2 weeks of getting diagnosed (but weeks after having symptoms), he had a stroke. He was never screened for GCA (which can cause a stroke). His PCP prescribed a lower dose of prednisone after my mom left 3 phone messages and the aforementioned visit to their urgent care. They didn’t even give us a referral to a rheumatologist and presumably didn’t attempt to consult with one at least for short term feedback.

Glad you’re finding help here and wishing you all the best.