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@car0

Just my 2cents worth, so leave it or take it or etc.
I wish I had an answer. I got Covid in 3/20 and was severely ill and quarantined until 6/20. I’ve seen numerous specialists, been told “there’s nothing wrong”, “I’m so sorry but can’t do anything”, “it’s in your head”, and “etc”! . I’ve gone thru a long Covid clinic: all labs all normal. I hesitated writing, because this may not help ANYONE at all… but I just found an immunologist who tested me and my labs came back w/ a zillion red arrows. I have been thrilled— bad news, but answers and validation. It’s so hard: everyone has different pre-existing, length and degree of illness w/ Covid, symptoms, etc. My point is that I think— heavy on the think— I will finally improve. You may want to see an immunologist; however, doctors are like dentists. Some are great and do great work, an few are sadistic money grubbers, and then there are the.vast majority who do a B average job and are invested a bit— but do not feel responsible to provide “the care” in medical care.
I so so hope you improve. All of us!!!

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Replies to "Just my 2cents worth, so leave it or take it or etc. I wish I had..."

Thank you so much! Its funny that you just wrote this. I just had an episode yesterday. I again went to the emergency room. I just bruised a rib playing tennis, I thought maybe it had something to do with my injury. My doctor told me to go to the ER. The rib may have punctured an organ. My once again crazy symptoms, rapid hearbeat, feeling like I was falling sideways, breaking out in a sweat etc. Many testd not a thing to do with my rib. Unfortunately it was my long covid again, I know the drill by now. The doctors in the ER looked at me like I was crazy once again. They also told me once again if it gets worse just come back. I think my neighbors which are also my friends are even starting to think I'm crazy they keep telling me I have anxiety. Unless you know someone with long covid or you were dealing with it you have no idea what we go through. I will take your advice as much as I want to hear the results it may help in the long run. Thank you so much for writing back I hope other people reading take the advice also. Take care of yourself.

Touched by your response. Expressing thoughts on what we are dealing with truly helps me and I’m sure it does others as well. A long term illness becomes an emotional battle at some point .At least it did for me. Kindness goes a long way in supporting people. Also, not feeling alone, thanks for sharing!

To car0 - Of course this is “all in your head”! We feel what we feel! After feeling crappy for days on end for months or years, who wouldn’t go crazy?! We’re all hanging onto our sanity by a thread! I got a mild case of COVID in Feb. ‘23. Since then I’ve had horrible dyspnea, hypertensive crisis, anxiety, complete heart block and needed a pacemaker. I’ve finally gotten a handle on the dyspnea and wonky heart. Now I’ve been hit with digestive issues. Loss of appetite and queasy stomach. I’m always living on the edge - wondering what I’m going to be hit with next. Less us all!