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Post-COVID Recovery is a Paradox
Post-COVID Recovery & COVID-19 | Last Active: Jul 22, 2023 | Replies (38)Comment receiving replies
Not to rant, but on other threads of this chat I’ve read long haulers insist that if you just do _____, it will fix you. But that is not helpful. In fact, I think it hurts. I’ve tried one such fix out of desperation, and it was money wasted ( just a nasal spray, but still!). We are all so desperate for answers, and I get it. I’ve been told that some of my new physical probs will not go away. But I feel very lucky. I’ve been searching for help since quarantined for a mean Covid case ( 3/20-6/20) and this is the FIRST time I’ve felt hopeful… because the immunologist can show me the zillions of red arrows on my labs and say: yes.
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YEP! Jesus, Prayer, Supplements, Exercise, YadaYadaYada... 'JESUS!' EVERYBODY GOT THEIR CURE and family just tells me, "Well, you LOOK marvelous, Mitch!" I've got a counter full of supplements, have people who pray for me (and yeah, even I have prayed for myself), I only get exercise if I take a load of AMPHETAMINES (Adderall Rx for my ADD/ADHD-so legit), have a truckload of FISH OIL due Monday morning (because ER doc actually mentioned it for inflammation so... using up the last of my supply now but 'no change yet), and B-Complex, D3, ZINK, Magnesium, Potassium, Melatonin... 'LOL' They want too cut into me and take a BIOPSY of my lymph nodes. Sounds very, very dumb, to me. WON'T / CAN'T order 'IL-6 (Interleukin 6) Test because 'not in their swimlane' - but it seems that's one of those tests that's going to give me the 'out-of-range' results I know I'm looking for - and for which 'IMMUNOLOGISTS and RHEUMATOLOGISTS' use for 'Followup ACTION' - and I know (because investigation/research) there are actually DRUGS PRESCRIBED for these things, by THEM. That's all I want - test me - try some drugs - see what happens - without some idiot cutting into me because, 'WE DON'T HAVE IMMUNOLOGISTS TO DO THE LOGICAL STUFF'. GAHHHHHHHHHHHH. They don't HEAR me - because NOT A DOCTOR and they seem determined to ensure I KNOW THEY ARE THE GATEKEEPERS. So. Scenarios to get to immunology department, somewhere, somehow... I'm at the 'LOL' point because all I get is 'BLOOD PRESSURE and COLONOSCOPY or COLOGUARD at every. Damned. Appointment. I haven't fired him yet because he's my own entry to the local system beside ER and I might need him for strep throat or a broken bone, sometime. 😉 Cheers.