← Return to Experiences with Mayo Proton, the Hitachi IMPT system, side effects?
DiscussionExperiences with Mayo Proton, the Hitachi IMPT system, side effects?
Prostate Cancer | Last Active: Jul 30, 2023 | Replies (18)Comment receiving replies
Replies to "I am your Huckleberry except for your PSA bouncing around. My PSA has been between 2.3..."
I appreciate your very detailed post, very helpful. I also have a very large prostate coming in at 123cc and looking to learn about the best treatment with the least side effects. I think I maybe leaning toward the MRIdian Viewray which I learned about on this Mayo Clinic blog as well as Precision Point TP biopsy. Hope to avoid ADT, like Lupron. Thanks again. Anyone want to comment?
Thanks so much for that reply! At least one person with BPH got proton! Real good info there.
Never had any uroflo test but the possible urinary side effects of proton or any radiation treatment are concerning, still are....
Yeah they all want to do ADT, which I told them I would turn down. They emailed all kinds of talk on ADT dosing and studies I could get into on differing doses of ADT, and I had already said no to all that.
I had no trouble getting the PSMA scan prior authorization so it should be paid when I get it, but 1.5 years ago insurance balked on one MRI payment from Mayo and I put in an appeal myself after Mayo said they were done trying, and insurance paid. So appeal was successful. I sent some guidelines stuff with the appeal, seemed to go through. So hope you get that paid. I think there is something about Mayo, the amounts they bill, or something else that they want a person to do an actual appeal so they know it was real.
Nice that the dose of proton you got was not huge, I get concerned with some of the dosing I read in papers. Mayo should brag they do it is less of a huge dose, some papers have double what you got, even admitting it was way too much. So that is real hopeful to me you got some dosing numbers.
Well I am real up in air till that PSMA, will see what it shows.
I heard that about coffee...