← Return to At NJH and need to vent

Discussion

At NJH and need to vent

MAC & Bronchiectasis | Last Active: Jul 6, 2023 | Replies (70)

Comment receiving replies
@busybeans

Truthfully, I'm not sure what these mean. I've never had anyone explain them in detail. I do know that in addition to NTM, bronchiectasis, and a cavitary nodule, I have had pseudomonas, rare yeast, and something else I can't remember off the top of my head. Like you, in the beginning, I looked for anything that would reassure me that I wasn't THAT sick...I still do - only in a different way. My goal now is that everything remain STABLE. As long as the NTM continues to wax and wane, and as long as the cavitary nodule remains the same size or smaller, I'm resigned to accepting that I will die with this disease - not because of it. I know you'll be prepared with your questions on Monday and hopefully get answers that will ease your mind. There may be someone else on this forum that has more information about your results. I'll be interested to know. In the meantime, hang in there until Monday. I've added you to my prayer list. Busy

Jump to this post


Replies to "Truthfully, I'm not sure what these mean. I've never had anyone explain them in detail. I..."

How did they treat pseudomonas

Oh yes , the culture results come piecemeal and can be alarming. I'm not expert but my sputum results often show those Gram positive and Gram negative items. (Positive ones are normal resp flora.) I have had stentotrophamonas and a fungus of some kind aa well as MAC, but have never been treated for anything but the MAC. .. so have stopped worrying about the results (except for the MAC culture!) Certainly ask Dr Daley but these are not necessarily cause for concern. ...