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Tough recovery after 2nd meningioma surgery
Hello good people,
My mom (69F) had her recurrent left frontal atypical meningioma (6cm) removed 3 months ago. Her first surgery was 10 years ago went very well she had speech symptoms that went away right after surgery.
However her recent surgery didn’t go so well. We discovered the tumor when we suspected a stroke and tuned out a 5.9 cm recurrence her only symptoms were the suspected stroke that resolved, swelling above her left eye and some distraction.
She underwent surgery a week later in April. It was completely resected but It was nothing like the first surgery. She had a very tough recovery. She’s much better now compared to first week but she has symptoms she didn’t have before surgery.
Her speech is impaired (she speaks very little and answers to the point and sometimes she doesn’t) deficits in her cognition, executive function, memory and concentration. She’s not fully independent and she has urinary incontinence. Her voice is weak and her physical strength is not back 100%, but movement is ok.
She had complications with CSF leak and pseudomeningiocele which thankfully resolved. She also had an 11mm hemorrhagic change showed on the MRI (I’m told it’s a small bleed) on the surgical site.
I’m told she’ll take 6 months to recover, it’s been very tough the first 3 months. she came a long way and but still far from her normal.
I’m planning hyperbaric oxygen treatment as I’ve been advised it could help her recovery.
Is this normal? Is the surgeon to blame? Any advice to aid her recovery? Anyone had such a tough recovery to share?
Best regards!
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HARD RECOVERY AFTER THIRD SURGERY
Hey folks,
My brother had a pituitary adenoma that grew to the point he had to have surgery 14 months ago. This was his third surgery in 13 years. The surgeons didn't get it all the first two times. The last surgery got over 95 percent of the tumor. He developed short-term memory from the last surgery. He still thinks he goes to work and drives. It's been 14 months since he did either of those. He still goes to therapy and does well with memory games. At any moment, he seems to be ok, but as soon as he says something about the recent past, he goes back twenty years. If he has to say something about the near future, he will talk about things before the surgery 14 months ago. He is in an assisted living facility now, and I do not believe he is in the best place for his condition. Most residents are in their nineties, and he is in his early sixties. He is perfectly functional in taking care of his own needs. But he insists he must go to work and always asks where his car is. I know he can't be alone at any time and can not go to work or drive. It is frustrating because he doesn't know that he has not been to work or driven for a long time. Any advice on how to help me or him will be greatly appreciated.
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1 ReactionMy husband had his second surgery on his left frontal, April 17th. The second one was a lot worse then the first. He is having trouble speaking, concentration, and being not able to understand what I am saying. His physical strength is half of his normal, maybe not even that. He has short term memeory. I am wondering if this will get any better. I am also wondering if this is normal or if there were complications with the surgery. I have an appt with the doctor in 2 weeks. I am not happy with the results. But this just may be normal and I should be thankful he is still with me. Yes, he is having a very tough recovery.
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1 ReactionI’d suggest discuss the MRI and symptoms with your doctor on your next appointment.
May I ask how he was in April compared to now?
Hope he recovers better in the upcoming months. And he’s with you that’s the bright side. Good luck!
Should I be concerned about the sinking places I feel in my incision from Menengioma surgery?