← Return to Natural remedies for MAC

Discussion

Natural remedies for MAC

MAC & Bronchiectasis | Last Active: Jun 20 9:12pm | Replies (45)

Comment receiving replies
@ritapearl

Sue, as I told you before I had a bad reaction to the big three two years ago.I passed out and tore my rotator cup. Since then I Ave used airway clearance.Just visited the Bronchiectasis,NTM Center at NYU Langone They now say Big3 plus Amicasin. To me the side effects are worse than the disease and the results. I have been considering Kampo medicine but am not sure if will help independent of macrolides. Ritapearl

Jump to this post


Replies to "Sue, as I told you before I had a bad reaction to the big three two..."

Ritapearl - What is Kampo medicine?
Sue
PS - My Grandma's name was Rubypearl - I always loved it!

I agree that it sounds like the side effects are worse than the disease therefore I am one that believes that I would rather live a good quality of life than a horrible quantity of life. I am working on my immune system to fight this. I am taking B Complex shots and several other immune building things on top of the one antibiotic that everyone says I shouldn’t take by itself I have spoken to 5 doctors and have also been referred to an Infectious Diseases doctor that I am currently waiting to hear from for an appointment. One doctor said to do nothing and recheck in 6 months. The 4 other doctors say that the 3 med cocktail is the chosen choice to kill this bug but understand that the side effects are sometimes very unpleasant and also can cause permanent damage to other organs. Therefore, at this stage I am reading all I can to figure this out and this group is absolutely wonderful. I am feeling great and have lots of energy. I am a widow and I live on an acreage that I mow and keep looking nice by myself without any problem. I would like to know any remedies that people have tried to avoid taking horrible drugs with horrible side effects.
I did get a nebulizer and am using 7% saline but still not coughing up anything. I would like to know any other suggestions of what to do to help except take more drugs. Maybe a trip to Hawaii. Lol
Thanks everyone