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Anyone dealing with Atypical Ductal Hyperplasia (ADH)?
Breast Cancer | Last Active: Sep 11 9:29pm | Replies (227)Comment receiving replies
The first concern I have for you is that you feel like you can’t trust your medical team. I think finding a new team and a doctor who will explain everything will make you feel less stressed. Don’t get me wrong. It’s stressful even with a good team. I haven’t had my MRI yet. So I am not even sure what it can and can’t see definitively. But for me once I knew I had an area of ADH I wanted it out and to make sure there wasn’t also cancer. The lumpectomy for me was what I wanted asap. I felt like let’s get in there and cut it out and check surroundings for cancer. I was ready to have a double mastectomy. My doctor laughed and basically told me to slow my roll. I forget the statistics but most people with ADH do not get cancer or have cancer. I’m sure you know the statistics because when I was going through it I read everything but feared worst case scenario.
I’m 53 now but was 52 and no family history. Just showed up as abnormal microcalcifications. I was lucky that they found no further sign of ADH or cancer with the lumpectomy. I’m in Massachusetts and loved my doctor. Located in Woburn MA. Not sure how far that is for you. Message me if you want to get more info.
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Having a dx of ADH - non cancerous, my doctor recommended removal of the tumor. I’m almost 79 with some other medical issues - hypertension, heart valve problem which are risk factors but I have no family history. After a lot of research I found that most women with this diagnosis do not go on to contract cancer- as little as 20% and even less in the first 5 yrs., especially in older women.
I just got a second opinion and he recommended getting a MRI which will show any cancer or changes by comparisons with the biopsy images. This seems to me the best next step. It will also show if there is any spread to the lymph nodes. Then depending on the results of the MRI a treatment plan can be chosen. I’m reluctant to have the surgery because of all of the above.
I wish you well
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Thank you Maureen! That's exactly how I'm feeling.
I know I just need more information about my specific case, and I'll get that over the next fortnight. And until then, trying not to totally freak out. Keeping busy and trying to keep perspective. Using this as a wake-up call for me to take better care of myself in a lot of ways.
I'm so glad you got the treatment you needed and are doing well! . . . I'm in southern RI about 90 minutes from Boston . . . I can't figure out how to message you privately?