← Return to At NJH and need to vent

Discussion

At NJH and need to vent

MAC & Bronchiectasis | Last Active: Jul 6, 2023 | Replies (70)

Comment receiving replies
@dulwich

Bon
I well remember my terror at the need for treatment- it is so easy to get very anxious when you hear about the potential side effects. My three years of treatment were not easy but I adapted and life was pretty good in spite of the inconvenience and blips along the way. I do hope that you will allow the doctors and science to guide your treatment decisions and recognize that our emotions can make things worse than the reality
Most people do get some variation on fatigue and GI symptoms, but other side effects are infrequent and medications can be changed or adjusted
About 50% relapse after treatment but not everyone needs to take medication again.
Leaving MAC untreated can also be dangerous if you are at a point where you have symptoms or lung damage is progressing
Please keep an open mind and learn all you can about what will be best in your particular situation.
Good luck with finding clarity and the best path forward

Jump to this post


Replies to "Bon I well remember my terror at the need for treatment- it is so easy to..."

The last three items on this report scare me, what is your opinion. I’m scheduled with Dr Daley on Monday..I’m scared

The last three items on this report scare me, what is your opinion. I’m scheduled with Dr Daley on Monday..I’m scared
Respiratory Culture
Many normal respiratory flora

Gram Stain Evaluation
< 0 Epithelial cells seen per low powered field

Gram Stain Evaluation
< 0 WBC seen per low powered field

Gram Stain Evaluation
Moderate Gram positive cocci in pairs, chains and clusters

Gram Stain Evaluation
Rare Gram negative rods