What type of doctor are you referring to, when you say that your doctor doesn't know the diagnosis given?

I guess that I got lucky with my traumatic brain injury back in 2008 (I think). I live in Rochester, MN, so my neurological doctors have been with Mayo Clinic throughout. I'd had brain surgery exactly one year prior to my TBI, to control my seizures. However, a slip on the ice and fall on my head complicated things for me. . That's where I'm coming from.

Anyway, it sounds like the doctor that you're referring to isn't strongly educated in brain functioning, and I'd recommend getting a second opinion from a neurologist that specializes in traumatic brain injuries. So, one who works at a hospital that has a TBI recovery department.

I'm sorry, but I forgot to grab a link or two for you to search through.. but, there are many decent brain centers throughout the U.S. What state do you live in? Start there, if you can. A lot of people from a few states surrounding Minnesota, do travel here for treatment. I'd imagine that other decent hospitals throughout the states have the same experience. So, you may need to travel a little bit, to get proper understanding and treatment for your TBI.

Sorry that I haven't specifically answered your question. But, I hope that my tip is helpful for you. Hugs and very best wishes sent your way!