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Peripheral Neuropathy? Family history? Don't wait!

Neuropathy | Last Active: Jul 4, 2023 | Replies (34)

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@njed

@ray666 - I had tests done in 2018 for CMT due to my PN symptoms and the doc who specializes in CMT was surprised the results came back negative. I asked about genetic testing, and I was told by Johns Hopkins in Baltimore that you need several in same family with PN symptoms to do genetic testing. I think the doctor said at least 3 people. I have nobody other than a second cousin who has PN but his is attributed to multiple back surgeries, according to his doctors. His symptoms are way different than mine. Mystery continues...... Ed

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Replies to "@ray666 - I had tests done in 2018 for CMT due to my PN symptoms and..."

Hi, Ed. I also understand that I would need several people in the same family to make generic testing of any practical value. Unless I hear otherwise, I'm of a mind now to let the matter drop. My neurologist has asked me to try an EB-N5 supplement. Have you heard of it? It appears to be some super vitamin supplement, several vitamins, minerals, etc., all packed into a single capsule. I'll try it, although something tells me it's a moonshot. But I'll try it; after all, what have I got to lose––except for the $140 for a three months supply? And the promo lit for EB-N5 says you need to give it at least six months to see if it's doing anything for you. Okay, six months. That'll be New Year's Day. That means I can start planning on running in Denver's spring marathon. Only kidding!––as if you couldn't guess. My partner and I have friends coming over for dinner: a couple, and he's deep into trying to problem-solve his diabetes. He, like I, has discovered this strange crossover between diabetes and PN. I know from past get-togethers if he and I start talking medical stuff … well, pity anyone else at the table! LOL ––Ray