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I am reaching out to those with DISH

Spine Health | Last Active: Mar 12 8:01pm | Replies (36)

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@dishpain

My suggestion to you is to read as much as you can about this disease. When I was told I had it, it was like a lightbulb moment. Things that I have been feeling for a while, now made sense. But I also had parathyroid disease and had a parathyroid removed and some things kind of crossover with symptoms. But I do live with dish And I am in pain most of the time, but not as much pain as I could be without pain management. Aqua therapy has also been good and I unfortunately have not been able to do it in a few months due to family issue. But my plan is to get back to it soon because it’s helpful in many ways. Find yourself a good spine specialist and I have a rheumatologist who can’t help me with the medications he normally uses for his patients, but is very informed about the disease. If you have rheumatoid arthritis, then he will be helpful for you. I do not have rheumatoid arthritis. I have osteoarthritis and dish which is a non-inflammatory arthritis or so they say. Doesn’t seem to make sense when I tell you to take a non-steroidal anti-inflammatory medication to treat it. So I get a lot of pain management treatments. I get them in my lower and upper back and now in my shoulder area into my neck. But I do have pain in my other joints as well. I have bone spurs in my shoulders, spine the bottom and back of my feet. The bottom and back of my feet I have had since I was in my late 20s to early 30s . I do still work full-time. So pain management helps me do that with the steroid blocks, epidural’s, and radio frequency ablation’s. I wish you good luck finding people who really understand this disease, and pray that your pain becomes manageable.

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Replies to "My suggestion to you is to read as much as you can about this disease. When..."

You sound like my twin as I have pretty much the same stuff you have, but I'm throwing fibromyalgia in also for me. I do have a good spin doctor and he treats me with injection as well along with pain medication. I have read as much as I can get my hands on, but I wanted to know a little more from the people who have been living with it.
Has your DIME gotten worse over the years or is it your arthritis that gets progressively worse?
I have been living with all of this for many years, but I didn't know I had DIME until I was diagnosed recently. Like you, a light bulb went off when I read all the symptoms. I was so happy to put a name to all the things I have felt for so long.
Thank you for replying to me. Karen