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@becsbuddy

@lisalisa Have you been able to take your daughter to a geneticist? And have you learned anything? Your daughter’s symptoms seem to be increasing and you’ve been using an EPI pen.
Frequent use of an EPI pen could signal a progression of a disease.
Has she been back to the doctor who prescribed the EPI pen?

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Replies to "@lisalisa Have you been able to take your daughter to a geneticist? And have you learned..."

The geneticist appt is still about 8 weeks away. We did recently see the Neurologist that prescribed the Epi pen recently and a new antihistamine and steroid medication was added. She has been 10 days without a rash. This is a marked improvement.