Oh boy— gotta say. This is SO not ok. People do not comprehend that there are so many, like you, who have no access to specialists! So, what I meant was that I’d been thru a long haul Covid clinic and had gotten tested for numerous things— and allllllll the tests were Normal. Then I found a good immunologic group, and they’ve done a boatload of tests I hadn’t heard of before. And I looked at my labs… red all over. I’ve never been so thrilled about bad news!
I don’t know if you can, but you may want to look up Mt Sinai NY long haul clinic. They are doing some cutting edge stuff, and having “lymphatic swelling” shouldn’t be brushed off. I don’t know if your insurance will pay for telehealth, or if you even HAVE insurance. But please keep digging. Go online and search the clinic. Call and see if they have financial help programs, or can assist w/ insurance negotiations. Look on CDC or your state gov for assistance w/ medical navigating….??? Shoot. I’m so so sorry.