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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@artist01

@kimh. My onset to GCA was gradual, and unfortunately not recognized as such by E.R. doctors until I presented with loss of vision in my right eye. I was feeling very unwell, had "head pain" mostly on right side, fatigue, and had gone to E.R. five weeks in a row without that diagnosis.
I'm relieved you're in the care of a rheumatologist. Headaches are one of the symptoms of GCA. Mine presented as right-sided temporal pain at first, not headaches. My scalp was also very sensitive to touch, and somewhat painful too.

I'd suggest you research Giant Cell Arteritis on the Mayo Clinic site, if you haven't already. Knowledge is power!

Wishing you improved health soon.
Laurie

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Replies to "@kimh. My onset to GCA was gradual, and unfortunately not recognized as such by E.R. doctors..."

I am currently on three mgs of prednisone. Will probably remain there. Sed rate is good but crp remains high. So glad to have people to discuss this however so sorry you are going through it.

Thank you for all the information. Were the pains on your right side continual?