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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@kimh

Yes, you sound like a 'special' case! But very good to know. I have suddenly starting coming down with migraines again. I hadn't suffered one for about 16 years, so something has changed. My rheumatologist is a little concerned about my PMR progressing to GCA. I am praying not! I have not noticed bulging veins and the headaches are not constant, so that is why I wanted to know if your onset of GCA was sudden.

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Replies to "Yes, you sound like a 'special' case! But very good to know. I have suddenly starting..."

@kimh. My onset to GCA was gradual, and unfortunately not recognized as such by E.R. doctors until I presented with loss of vision in my right eye. I was feeling very unwell, had "head pain" mostly on right side, fatigue, and had gone to E.R. five weeks in a row without that diagnosis.
I'm relieved you're in the care of a rheumatologist. Headaches are one of the symptoms of GCA. Mine presented as right-sided temporal pain at first, not headaches. My scalp was also very sensitive to touch, and somewhat painful too.

I'd suggest you research Giant Cell Arteritis on the Mayo Clinic site, if you haven't already. Knowledge is power!

Wishing you improved health soon.
Laurie