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Adjusting to life with temporal arteritis
Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)Comment receiving replies
I noticed dark veins about 7 days before the biopsy. I did not pay much attention, I thought maybe it was a rare Covid related thing, and decided to check it out. I literally had no other symptoms. I should add that I rarely get headaches except for sinus ones. I took probably 5 regular strength Tylonol for mild discomfort during the past month.
I have not seen anything like my experience on the Internet or in a posting, so I decided to just post what happened. GCA gone in a month? Of course the tapering off the steroid may be a different story. My care will be from my Internal Medicine Dr. I am not sure at this point how sudden vision loss would be handled or if it is likely. Thanks for your interest.
Replies to "I noticed dark veins about 7 days before the biopsy. I did not pay much attention,..."
@sophie32 I've been fighting GCA since 2018. It's never a short term issue. Glad you're in the care of a specialist. Steroids are one of the important medications for controlling the symptoms. I was on Prednisone for 1 1/2 years, and have been on weekly Actemra injections since November of 2019.
Warmest regards,
Laurie
I am experiencing almost the same thing. I feel strongly that it could be GCA my said rate and CRP are both within normal range. I just noticed dark veins coming from the top of my forehead down towards my temple area. I am strongly leaning towards having the biopsy. Can you tell me if the top of your head was also very painful? I don’t experience headaches just had pain on the right side. I can’t seem to get much help from Drs. Too quick to diagnose and give me amitriptyline or gabapentin. Thanks for your help.
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Yes, you sound like a 'special' case! But very good to know. I have suddenly starting coming down with migraines again. I hadn't suffered one for about 16 years, so something has changed. My rheumatologist is a little concerned about my PMR progressing to GCA. I am praying not! I have not noticed bulging veins and the headaches are not constant, so that is why I wanted to know if your onset of GCA was sudden.