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@squire123 Hello, I am guessing you never got any responses to your post 3 months ago about M. lentiflavum, but that doesn't surprise me. It is one of the family NTM (non-tubercular mycobacterium) and fairly closely related to the group known as MAC (M avium complex.)
NTM is considered a rare infection, affecting perhaps 100,000 people in the entire US. M. lentiflavum makes up less than 1% of the known cases. So the odds of any other Mayo Connect members also have it are very low.
However, being closely related to MAC, treatment is nearly the same, with 3 antibiotics. The main difference is that the primary one used is clarythromycin instead of azithromycin.
Have you been prescribed antibiotics for your infection?
Sue
Replies to "@squire123 Hello, I am guessing you never got any responses to your post 3 months ago..."
Now cases reported in Collier Co, Florida, I lived in Naples from 1974 to 2012.
No tx right now from ID Dr. Watchful waiting, no nodules or exacerbations. Off to New pulmonary doc this week.
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Hi Sue, Is M. lentiflavum Harder to treat than MAC? My doctors are deciding whether to start treatment or wait until my appointment with NJH in August. I use inhalation tobramycin for pseudomonas, but also have bronchiectasis, bronchiolitis & a few other lung issues. I was treated for MAC about 2 years ago & kicked it with “the big three”. I am more worried now because my lungs are in worse shape & having a new MAC adjacent infection.