← Return to Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Discussion

Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:28pm | Replies (113)
Comment receiving replies
@kim1965

Thanks! We got a CT scan earlier this week and met with our cancer team today. It did show signs of some growth in the liver, not to worry, getting a MRI to confirm in 2 weeks, then the team will meet on the best course of action. Other than the challenges of the diabetes, all is going well. Whatever is growing will be addressed by the procedure which will continue this long path of keeping NET at bay. I’m wondering how everyone is doing that had their tail of pancreas removed? What challenges have you incurred and what has worked in dealing with this new normal in our life’s.

Jump to this post

Replies to "Thanks! We got a CT scan earlier this week and met with our cancer team today...."
pavlina60 | @pavlina60 | Jun 30, 2023

Hello kim1965! Hope the drs choose the right treatment after seeing the results of the MRI!
I had my distal pancreatectomy ( removal of the tail and most of the body of the pancreas, spleen and gallbladder). I am doing well. My blood glucose is stable ( under 90 at fasting; A1C wa 7.1 before surgery, 2 mo after it was 5.4!). I learned to eat small amounts of food, nothing fried or spicy. I started taking Creon ( pancreatic enzymes to help digestion). Gall bladder was removed b/c lanreotide ( which I am on) produces stones and eventually had to be removed).
There is life after distal pancreatectomy :). Ask any questions you may have!
Good luck and we got this!🦓💜!

VIEW AND REPLY