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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Hi, I have sometimes complex seizures where the doctors are the complexed ones 🙂 Well I'll be talking and then I'll tell them my arms are feeling strange they will start shaking a little bit and then I don't remember anything for hours. Sometimes I am staring for hours and someone (daughter, or husband) will find me they will either sit me down or lie me down and then how I respond decide what to do with me. Those type of episode I don't do well with. The small on and off ones I'm OK with usually I am sitting by myself and I just realize a show that I was watching is over and I only saw a few minutes. Everything is strange in its own way.
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Hi @1775house
I do have exactly the same experience you described during my partial complex seizures.
"I am sitting by myself and I just realize a show that I was watching is over and I only saw a few minutes."
I started to shake a bit while I was medicated with AEDs (Lamictal, Tegretol, Trileptal, Vimpat and Gabaneurin). But those shaking during the seizures have disappeared with the CBD medication. Quite earlier, before being treated with AEDs did you have also shakings during your seizures?
I liked your saying "Every success begins with a failure and the only failure that starts another failure is not asking what's wrong". As I have heard from someone, we have to look not at our falls, but at our uprise or lifting after falling. Sorry, I can not remember the best word in English now.
If I can be of any help, please do not hesitate to contact me.
Take care,
Chris/Santosha