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At NJH and need to vent

MAC & Bronchiectasis | Last Active: Jul 6, 2023 | Replies (70)

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@michelleleonardo

I am so sorry you had this experience. Mine was totally different and being a nurse I was very impressed with how the visit went. Doctors, nurses, respiratory therapists and ancillary people were all knowledgeable and helpful! (Mind you I’ve never told any of them I’m a nurse because I did not want to be treated as if I already knew most of the information). I will have to agree with others that after the visit it is hard to get return calls or emails. Be the squeaky wheel and you will get answers. I will continue to go because they are the EXPERTS in this disease. I did my research and this is why I chose National Jewish. You are the best advocate for yourself. Take away as much information as you can get. See your new doctor. Remember, the doctors are also learning daily how to deal with this disease. Every patient is unique. Be in tune to your body and keep a journal of changes. Even though I’m a nurse, I learn something new about this disease weekly. It can be overwhelming both emotionally and physically. If you need to talk or have questions please reach out I would love to help in anyway. Tomorrow is another day!

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Replies to "I am so sorry you had this experience. Mine was totally different and being a nurse..."

Michelle, Thanks so much for your response and offering support. This has been a highly emotionally charged experience for me after experiencing a lot of incompetence in Georgia. Dr Swenson in Atlanta has a great rep and I have an appointment with him July 20th. I’m doing the clearance stuff and have been for several months, despite the fact that my (ex) pulmonologist said not to do it. He also said I don’t have bronchiectsasis and he was wrong. Good thing I read this blog and participate in it, because I learned everything I know from the wonderful people here. We are all in the same boat and there is such wonderful support and information here..I’m so thankful for that.