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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@johnbishop

@angelbear4, The swelling around the neck and face is one of the possible side effects with prednisone. I think it should get better when you are able to taper the prednisone dosage to 10 mg or less. Here is some information on the side effect - Facial Swelling Caused by Prednisone: https://www.verywellhealth.com/prednisone-facial-mooning-1942983

With your upcoming appointment with a rheumatologist, have you considered making a list of questions to ask the doctor? The Patient Revolution website has some question cards that you can print out to plan your conversation with the doctor/rheumatologist:
https://patientrevolution.org/visit-tools

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Replies to "@angelbear4, The swelling around the neck and face is one of the possible side effects with..."
angelbear4 | @angelbear4 | Nov 10, 2020

Thanks John...I will check out the list of questions as well so I don't forget to ask certain things..

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joybringer1 | @joybringer1 | Nov 10, 2020

Thank you for sharing these sites. I gained 10 lbs. while on prednisone. I had the "moon face" which I called "chipmunk cheeks." I had to renew my driver's license during this time and tried to pull my hair over my cheeks. My husband said no one would see that license picture. I know 10 lbs. does not sound like much, but I began at 100 lbs. so it made a huge difference and I have had to give away a lot of my pants. Yes, the weight settled around my middle and hips. I ate everything in sight. This is not like me, but prednisone brings a lot of side effects. My friend experienced euphoria while on a short course of prednisone. Never happed to me. I am once again eating all the wrong stuff during this pandemic. I have no excuse for not exercising. I have lots of exercises I could be doing, from PT. I need to begin doing something and not brood about all that is happening. I have decided even if my PMR symptoms begin again, I will not mention it to my doctor. I know, I know, I have been warned that GCA comes afterward. Of course, I could change my mind if symptoms come again. Again, thank you for these sites. @joybringer1

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