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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@angelbear4

I was diagnosed with temporal arteritis 2 months ago and put on 60mg. of prednisone right away...I have been slowly tapering down and just started on 2 weeks of 25mg. but still have alot of jaw discomfort and the feeling of exhaustion all the time. Does anyone else get a feeling of numbness over the face and eyelids? Also, the areas of swelling of the face and around the front and back of the neck neck? I asked about a specialist that deals with this and was told that my family dr. would be handling things and would set at which rate the prednisone would be tapered off...Any other insight of things or what will be happening would be great to hear. Being diagnosed during a pandemic is also nerve wracking....I am 72 yrs and did have a biopsy for confirmation....

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Replies to "I was diagnosed with temporal arteritis 2 months ago and put on 60mg. of prednisone right..."
John, Volunteer Mentor | @johnbishop | Nov 6, 2020

Hello @angelbear4, Welcome to Mayo Clinic Connect. I'm sure it must be frustrating and nerve wracking to be diagnosed and not being able to get the answers about what will be happening. @amptrooper @tinkerbell @jmjlove and others may have some information or suggestions for you.

Since you were only diagnosed 2 months ago and started on 60 mg prednisone dosage and are now at 25 mg, that doesn't seem to be slowly tapering down on the prednisone. I know each of us are different and tapering is normally based on how well the symptoms are controlled when tapering down. You can find more information on Giant Cell Arteritis (sometimes call temporal arteritis) on Mayo Clinic's site here - Giant cell arteritis - Diagnosis and treatment: https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/diagnosis-treatment/drc-20372764.

Have you discussed the tapering schedule or your symptoms with your doctor?

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654321 | @654321 | Nov 6, 2020

So glad you are tapering off. It s so bad when the dose is high. Been battling this for about six years. So glad to talk to others who have this rare issue.
Hang in there and the beauty of this post let s talk whenever you want?

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