Thank you for this information @mimimmx. He lost about 12 pounds in the few days following treatment. As soon as he started feeling better, he has put 8 pounds back on. He's eating at least 2000 calories a day and drinking at least 1800ml water per day. On his day of chemo, he did have anti nausea and fluids prior to infusion. When they disconnected his 5FU pump 2 days later, they gave him more IV fluids and anti-nausea. They wanted to do more fluids 5 days later but he didn't at all appear dehydrated and he was eating and drinking like a champ. He got really annoyed because on his week off of chemo, he doesn't want to go into an infusion center...which I understand that. They recently gave him Olanzapine as well. Do you stay on the Olanzapine daily (they told him to take it at night) in addition to the compazine and zofran every day after infusion up until your next one OR only when nausea presents himself? You have been super helpful. Sounds like you are doing great during your infusions? Are you seeing someone at the Mayo Clinic?
I take Olanzapine every night. 10mg on day of infusion and next four nights. Then back down to 5mg. On the other anti nausea meds, I use both Zofran (when I wake up, mid day and when I go to bed). And compazine twice a day in between the Zofran. That is for the first week post infusion. Second week I pull pack to Zofran only in morning and before bed. I do think the Olanzapine was the game changer for me. If I have diarrhea, I take two Imodium right away and that stops it. I still get fatigued easily with long work days, but overall I can function very well.
I am I. Lexington Kentucky and being treated at the University of Kentuckey’s Markey cancer center.