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At NJH and need to vent

MAC & Bronchiectasis | Last Active: Jul 6, 2023 | Replies (70)

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@tconz

I am so sorry to hear you are experiencing such disappointment. I had excellent care while there but once I left everything changed. I am supposed to go back in November but may hold off until I find out more about your Doctor in Atlanta (much closer to me) that specialized in Mac/Bronchiactisis.
The doctors I saw were excellent and took as much time as I needed so, do you mind telling me who your doctor was (just want to make sure I don't ever get them)?
Since you are already there just absorb as much helpful information as you can and if I can help with my experience with any of the medications or equipment please don't hesitate to ask.
Again, sorry you are experiencing this kind of treatment.

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Replies to "I am so sorry to hear you are experiencing such disappointment. I had excellent care while..."

Hi Terry, The Dr in Atlanta is Colin Swenson. He has an excellent reputation re Mac and Bronk. I requested NJH forward all my records to him. I want copies too..
I was extremely angry and disappointed the day I wrote my “vent” blog. Have experienced a lot of incompetent drs in Georgia and it pushed my buttons. Patients are people , who have feelings and don’t feel well, and they should be treated with kindness and respect……..
There have been a lot of good people here and a lot of tests etc. I’m trying to think of that and not the hurtful episodes.
I didn’t know I have COPD. I really don’t have symptoms. He thinks it’s cause my parents smoked. I’m a little scared cause I have three things. Mac, Bronk and COPD. I’m going to start walking when I get home and make some lifestyle changes………I’m getting a vest and will co tinge nebulizing with 7%……..
How are you doing?