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Stage IV

Pancreatic Cancer | Last Active: Aug 18, 2023 | Replies (29)

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@mayoconnectuser1

amchurch,

Sorry for the diagnosis, as well. You don't note where the mets are, how advanced the tumor is, or its location?

To have an improved chance, he needs to relocate to a major center - MSK, Anderson, Mayo, etc. This needs to occur as soon as they agree to accept him as a patient. Any center will be able to perform a laparoscopic Whipple - if they don't do these, then, IMO, they are not a center of pancreatic cancer excellence.

Go to the pancan.org website - call and talk with the various centers.

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Replies to "amchurch, Sorry for the diagnosis, as well. You don't note where the mets are, how advanced..."

Thank you. The mets are in a few lymph nodes in the abdomen. He had a PET scan and a few spots lit up in the lungs but they are so small they are too small to even biopsy to get an adequate tissue sample. Some of my radiologists said without an actual biopsy...those spots in the lungs could be infectious or granulomas. I don't know for sure. The tumor is 4.8x5 on the head of the pancreas. According to one of my rads, it appears to not be interferring with anything else and could be resected if need be. It is not in his liver. We have contacted Mayo, Dr. Mark Truty, and they are waiting on his medical records. Do you have experience with this personally? I really appreciate the great information you have provided.