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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@MLeeB

What I mean is....when I was first diagnosed I was very ill. The pain in my head and jaw were gone after the first 12 hours of being on prednisone. After 3.5 years of being on prednisone the blood work is stabilizing but they are now testing me for adrenal insufficient . Apparently my cortisol level is very low. One more thing to deal with...Yuk! Getting pretty sick of this.

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Replies to "What I mean is....when I was first diagnosed I was very ill. The pain in my..."
tinkerbell | @tinkerbell | Mar 2, 2019

@MLeeB - Hi again - The first thing I read said you had been on Prednisone for 5 months. I am so sorry to hear that you are having so many problems. I had the ACTH blood test when I got down to 5 mg to see if my adrenal gland was working. It was working and they thought I would do fine which I did. If you have been on Prednisone for 3.5 years now, were you on it for another reason or just the Giant Cell Arteritis.

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