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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@tinkerbell

@bgaro - I went down 10 mg every 2 weeks until I got to 20. I starting feeling terrible and I had swelling on my cheekbone and in the temple area. I called the doctor but could not get in touch with her so I went back up to 20. I was on the 17.5 for 1 1/2 weeks when all of this happened. I kept really good notes on my calendar. I was really afraid to start the taper again but the doctor said I had to continue down. I told the doctor I only wanted to go down 1 mg at a time and she said that was fine. When I got to 10, I continued down at 1 mg every 2 weeks. When I finished 7 mg, I went to 6 1/2 and did 1/2 every 2 weeks until the end. My husband is a research person and did hours of research on tapering. We were really surprised I had the problems at 17.5. One thing we read said not to go down more than 10% at a time and that is why I changed over to 6 1/2 from 7. I had no problems after the initial problem at 20. It is a long journey. Keep us posted on your progress.

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Replies to "@bgaro - I went down 10 mg every 2 weeks until I got to 20. I..."

How were you able to do the 1 mg. What is the lowest dosage of pred. This is my plan also. Very slowly. Thx

I have also had problems lowering the dose of prednisone. I have had so many problems that After I got to 15mg my doctor had me go down 1/2 mg a month. I made it down to 7 mg and again felt so horrible that I went back up to 12 with my doctors approval. I am now just at 11.5 mg and am back on the 1/2 mg a month reduction plan