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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@tinkerbell

@bgaro-The surgeon that did my biopsy said if the first side came out negative then they would have gone to the other side. I was so happy the right side came out positive so they did not have to do the other side. None of the doctors I went to in Orlando, Florida knew what was wrong with me. Finally we drove over 2 hours to Mayo Clinic in Jacksonville and went to the Emergency Room. I was diagnosed in 1 1/2 hours and they set the biopsy for the next day. Your Sed rate was a lot higher than mine was. The most important thing you can do is taper down slowly. I had problems from 20 mg to 17 1/2 mg and then had to go back to 20 for a few weeks and then went down 1 mg every 2 weeks to 10. It was a slow process but worth it in the long run. If you have any questions along the way let me know. It is a long journey and then of course the weight gain. You will gain weight in areas you would not have thought about. Good Luck!! Have you ever had the old Shingles Vaccine? They thought the reason I did so well was because I had the Shingles Vaccine.

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Replies to "@bgaro-The surgeon that did my biopsy said if the first side came out negative then they..."

Would you believe they couldnt find a vein for biopsy on one side. They did the other side but the 15 minute procedure took 1 hour and 15 min. Then was told by rheumatologist that the sample was too small. No never had the shingles shot. I’m happy to hear that you tapered that slowly. One of my drs said to go go from 60 tapered down to 40. Think that is way too fast. . When you went to 17 1/2 what symptoms did you have that required you to go back to 20.