Thanks for all this great information. You guys have all been extremely helpful. It feels as though if you don't advocate for yourself, you will not get the best care. It's sad. Local oncologist keeps saying Standard of Care. We want better than the standared of care. MD Anderson may be too far...not sure but Atlanta is not so bad. We have his stuff submitted to mayo clinic in Rochester, MN. We also are sending it to Sloan. He has his stuff so far sent to NY presbyterian/Columbia University at NYC to see Dr. John Chabot as well. I've been researching my butt off for him. He's off to the right start....chemo first. I'm so glad to hear your news. I'd love to be able to communicate with you with any questions we may have. IS there a better way than this discussion board? Thank you again. You all have given this young man and my family hope.