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Living with Stage 4 Liver Cancer

Liver Cancer | Last Active: Dec 2, 2023 | Replies (41)
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@dbamos1945

Hi cu2@cu2!
Many months ago I recall we shared a post regarding our stage 4 liver metastases. My primary NET tumor is small intestine, as I think your’s is too. I haven’t been offered any procedures except the monthly Lanreotide (SamoDepot) shot. I offer you hope and a hug that your tests come back stable. The “unknown” try’s to drive us crazy so don’t listen to any negative thoughts! Results only confirm that…“It is what it is!” Many hugs… Bette

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Replies to "Hi cu2@cu2! Many months ago I recall we shared a post regarding our stage 4 liver..."
ricki8 | @ricki8 | Nov 27, 2023

Hi dbamos1945
When was your diagnosis and how long have you been on Lanreotide?
I also have stage 4 liver metastases with primary in my small intestine. Found by accident in late March 2023. We are all different (esp. with NETs), so it would be nice to compare, but somewhat difficult. I started in Aug. with every 4 weeks of Lanreotide, but moved it down to every 3 weeks (after 2 months). Going in for Bland Embolization tomorrow and then PRRT for 32 weeks. There is a newly approved system of non-invasive ultrasound - available any day now in designated locations in the U.S.
https://histosonics.com/
I found this and my surgeon and oncologist suddenly perked up.
It is very important to be pro-active and be your own advocate for all your treatment. The medical system is overburdened with all the aging boomers.

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