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@santosha

Hi Jake (@jakedduck1)
Ask me how many times you want, no problem. I also do have memory issues.
During my seizures, I first get an aura and then a complex seizure. My awareness and speech are not impaired during the aura, which is so quick and lasts 3 seconds. But when the complex seizure is there, my husband says I just stare, stop speaking and stay quiet. I do not have any body movements (I had those when taking AEDs). When he is next to me, he takes me to sit down and holds my hand. He says I do correspond to that, even though I am not able to speak. When alone, I also try to sit down or go to bed if I can and stay quiet. Deja vu feeling is something always present. When younger I also had some smell and taste in my mouth (very typical for temporal lobe epilepsy) during a seizure. But this has disappeared when getting older. With my current treatment with medical cannabis (CBD) my seizures have become milder, with very light body contractions and fast recovery. Right after a seizure, I am very confused and can not speak. How long? It depends on the intensity of the seizure. But it does not last longer than 1 hour. Ah, my seizures last less than 1 minute nowadays.
BTW, this afternoon I have seen a webinar on brain stimulation methods to stimulate memory, even in people with neurological disorders like Alzheimer's. It has not been yet studied in people with epilepsy, as they fear this might cause a seizure. It is still a study, a very interesting one with great results on people with Alzheimer's. But to evolve, as it was mentioned, it needs financing. The pharma industry in the US seems not to be much interested as this method can not be patented. Hope, this doctor receives some financing to continue his studies.
If you have any other questions, feel free to ask me.
Chris/Santosha

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Replies to "Hi Jake (@jakedduck1) Ask me how many times you want, no problem. I also do have..."

Hi, I have sometimes complex seizures where the doctors are the complexed ones 🙂 Well I'll be talking and then I'll tell them my arms are feeling strange they will start shaking a little bit and then I don't remember anything for hours. Sometimes I am staring for hours and someone (daughter, or husband) will find me they will either sit me down or lie me down and then how I respond decide what to do with me. Those type of episode I don't do well with. The small on and off ones I'm OK with usually I am sitting by myself and I just realize a show that I was watching is over and I only saw a few minutes. Everything is strange in its own way.