Hello, @amptrooper, and welcome to Connect. You certainly have endured a lot in your 43 years with your motorcycle accident and the physical results of that plus now the symptoms that are plaguing you and for which you are seeking answers, especially whether it may be possible you have temporal arteritis.
Your thought of going to the community of people who have temporal arteritis to get some insights from those who've experienced it on your symptoms and whether they might truly add up to this disease - and then allow you to advocate for yourself with your medical team, armed with more input - is a very appropriate one. They may also have some thoughts about the scheduled ultrasound on your arteries you have coming up and what can be determined from that.
I'd like to invite @masonc @dchandler7 @captainkenny to return to this discussion to offer their insights and support, and I'd like to bring @bt56 @elderdiana @johnbishop into this discussion for the same.
What symptom, of the various you mentioned, @amptrooper, is bothering you the very most currently? How are you managing it?
@amptrooper I was diagnosed when I was 58 and was told I was too young by the doctor that did my biopsy but my rheumatologist said not everyone fits in a nice neat box. When high doses of steroids made me feel better than I had in years my doctor said that was more convincing than any other test that I had Giant cell arteritis. Please don’t get discouraged and be your own best advocate. If you have any specific questions please ask