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Adjusting to life with temporal arteritis
Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)Comment receiving replies
Welcome back, @captainkenny. Like @johnbishop said, Connect is a place for patients to connect and share experiences. So states the disclaimer https://connect.mayoclinic.org/page/about-connect/tab/disclaimer/
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Having said that Connect clearly demonstrates the value of connecting with other patients to find you’re not alone, help problem-solve, learn new coping strategies, find trusted health resources, recommend care providers and so much more. Glad to have you contribute to the meaningful exchange.
How incredible that prednisone helped alleviate your pain within hours. Is the goal to maintain control of the pain with continued use of prednisone or is the hope to be able to reduce the dosage further and even discontinue using it?
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I too was just diagnosed with PMR. I have been treated for giant cell aortic arteritis. Just got off prednisone in July. By September I started having shoulder, leg, and arm pain. Had trouble combing my hair and sleeping on my side in addition to legs that ached. Apparently the former prednisone masked the PMR. Now back on 20 mg of prednisone and in four days, pain is gone. Plan now is to reduce the prednisone to 10 mg in two weeks. For anyone who has this, dont give up hope. There will be some solution to it even if the dosages of prednisone are different from mine.