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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)
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@dchandler7

little scary now, because the the head tension is happening all the time now without doing anything. My ears are plugged (especially on the side i chew with I noticed)..it's like being on the plane and your ears plugged, but wayy worse. I am very fatigued to do anything now, before i had little more energy..blood tests say normal, but now I am learning by reading the blood tests are flawed for up 20 percent of people, (especially if you're under 50),,any info I would be grateful so when I go back to the doctor they are forced to look more..I am trying to be positive about it but i am having some pretty severe symptoms

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Lisa Lucier, Moderator | @lisalucier | Nov 12, 2018

Hi, @dchandler7. Along with my colleague @ethanmcconkey, I'd like to welcome you to Mayo Clinic Connect.

I'd like to share some Mayo Clinic information on temporal, or giant cell, arteritis https://www.mayoclinic.org/diseases-conditions/giant-cell-arteritis/symptoms-causes/syc-20372758.

Also, I'd like to introduce some additional Mayo Clinic Connect members who may have some input as you are dealing with head pressure, plugged ears, fatigue symptoms, jaw and neck stiffness, nausea and lightheadedness, among other symptoms, and are trying to get diagnosed. They may also have information on testing done by their doctors and the process of their diagnoses. Please meet @crhp194 @tinkerbell. @johnbishop also may have some thoughts for you.

My understanding, @dchandler7, is that you are feeling quite sure your diagnosis may be temporal, or giant cell, arteritis? Have your doctors looked into this as a possibility in your case?

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