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Adjusting to life with temporal arteritis

Polymyalgia Rheumatica (PMR) | Last Active: Jan 13 9:52am | Replies (217)

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@dchandler7

I am 42 yr old, living in toronto who is desperate to get info so I can get diagnosed. I have had the normal blood tests to check twice ESR and creatine and they 2 doctors say I am to young to have it, but I have all the symptoms and nothing shows on brain MRI. Current symptoms after a bad virus they don't know what was, tension headaches on temples gradually getting worse over the past couples and more frequent (few times a day), and sometimes they are followed by TIA symptoms such as weakness of numbness in leg, arm, hands, pins and needles in finger tips, little vision problems, now my jaw and neck are getting quite stiff are times, like cracking and popping, but the usual tension is on temples both sides, extreme fatigue, nauseous, light headed at times. I was very active person before this all 3 months ago, but now if i do anything with a little exertion i get tension headaches followed by TIA (stroke)symptoms.. doctors treating it like a joke cause of age and nothing shows on normal blood tests. Has someone gone through this where it hows normal on blood tests? I am scared to death to try to do do anything active now, and any info I would grateful as you might save my life. So I can go back to doctors to force them to test more.

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Replies to "I am 42 yr old, living in toronto who is desperate to get info so I..."

Hi @dchandler7, I would like to add my welcome to Connect along with @ethanmcconkey @lisalucier and other members. I have PMR and my doctor asked me about pain around the temple and scalp but mine has always been with hands, arms, shoulders and legs joints. I have had different Sed rate (erythrocyte sedimentation rate) labs and my doctor took the time to explain what the test numbers mean. Mayo Clinic website has some good information on the test here:

Sed rate (erythrocyte sedimentation rate)
https://www.mayoclinic.org/tests-procedures/sed-rate/about/pac-20384797

There are some conditions listed under the Accuracy of test results section that list some of the complicating factors for test results. Have your doctors explained the test results and mentioned how it may apply in your situation? Is a second opinion an option for you?

John