Yes, I did have genetic screening not long after the primary tumor was resected in late 2016. The endocrinologist thought it would be a good idea so she referred me to a genetic counselor at City of Hope. It was discovered I had a mutation in sdha which at the time they felt was good. They were hoping not to find anything in sdhb which is widely considered to be a more aggressive subtype of Pheochromocytoma/ Paraganglioma. However they are recently finding in other countries where more research is being done on these diseases that sdha can behave similarly to sdhb in that it can metastasize early and exhibit suboptimal response to conventional treatment strategies. I don't believe the testing has greatly influenced the dr.s decisions as much as the serial imaging that is performed but I do believe it is something they are aware of and may impact any changes in the regimen I am receiving going forward.
Hope that helps