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Husband diagnosed with tonsil cancer: looking for tips and support
Head & Neck Cancer | Last Active: Apr 4 11:41am | Replies (174)Comment receiving replies
@dloliver my cancer was near the vocal cords, the "Pyriform Sinus." On this site, I have written extensively about my experience with radiation, and other facts. One is "Red Light Therapy (RLT)." You can purchase a little wand for under 20 dollars. My views on this therapy are very positive. This is because after a slow recovery and two "Swallow Studies," my ability to eat, drink, and talk, returned after approximately one year. Also, after radiation was over, the speech therapist prescribed many exercises of the mouth, tongue and throat muscles. According to the research online, RLT has proven to have positive implications on radiated tissue.
As for alternative treatments, I tried several methods like no sugar, molasses and baking soda (I still shudder), etc. They did not work for me.
Lastly, the Oncologist explained that Chemotherapy would increase my survival chance by 1-2 % with a huge risk of hearing loss. I chose to not have the process.
I wish you the best and remember that time will heal.
Replies to "@dloliver my cancer was near the vocal cords, the "Pyriform Sinus." On this site, I have..."
My husband also has been using RLT post treatment. It has really helped with edema. There is scientific studies that confirm its positive effect on animals, but not human. Hubby said, if it’s good enough for my dog, it’s good enough for me! His SLP gave him self treatment exercises to help drain the the lymph nodes and it is really helping. He lost 42 lbs during this journey, and is now working on increasing his muscle mass. He did lose a lot of muscle mass, which is unfortunate. I tried to encourage him to keep up with strength training, but all his strength was used up with just trying to get enough nutrition and fluids into him. He is suffering with back problems, something he has never had before and I suspect the loss of muscle is the cause.
As well, his Oncologist did explain the exact same thing on the 1-2% increase with the addition of Cisplatin, with the risks associated for his age of 70. He also chose not to have the chemo, and did 35 rounds of radiation.
He is scheduled today for a PET scan. Fingers crossed he has beat this demon we call Cancer down!
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Is there a video on how to use the wand? I am interested.